AUTHOR=Brandi Maria Luisa , Carpenter Thomas O. , Fukumoto Seiji , Haffner Dieter , Imel Erik A. , Kanematsu Masanori , McCullough Keith P. , Ozono Keiichi TITLE=Advancing patient evidence in XLH (APEX): rationale and design of a real-world XLH global data unification program JOURNAL=Frontiers in Endocrinology VOLUME=Volume 16 - 2025 YEAR=2025 URL=https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2025.1471127 DOI=10.3389/fendo.2025.1471127 ISSN=1664-2392