Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 19 Mar 2020

German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)

in ELSI in Science and Genetics

Sabine Wöhlke
Manuel Schaper
Serena Oliveri
Ilaria Cutica
Francesca Spinella
Gabriella Pravettoni
Daniela Steinberger
Silke Schicktanz

Frontiers in Genetics

doi 10.3389/fgene.2020.00102

4,465 views
10 citations

Original Research

Published on 06 Mar 2020

Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing

in ELSI in Science and Genetics

Rispah Torrorey-Sawe
Nicole van der Merwe
Simeon Kipkoech Mining
Maritha J. Kotze

Frontiers in Genetics

doi 10.3389/fgene.2020.00170

6,619 views
16 citations

Methods

Published on 03 Mar 2020

Development of an Evidence-Based, Theory-Informed National Survey of Physician Preparedness for Genomic Medicine and Preferences for Genomics Continuing Education

in ELSI in Science and Genetics

Belinda J. McClaren
Emily A. King
Erin Crellin
Clara Gaff
Sylvia A. Metcalfe
Amy Nisselle

Frontiers in Genetics

doi 10.3389/fgene.2020.00059

9,497 views
30 citations

Original Research

Published on 03 Mar 2020

Preparing Medical Specialists for Genomic Medicine: Continuing Education Should Include Opportunities for Experiential Learning

in ELSI in Science and Genetics

Belinda J. McClaren
Erin Crellin
Monika Janinski
Amy E. Nisselle
Larissa Ng
Sylvia A. Metcalfe
Clara L. Gaff

Frontiers in Genetics

doi 10.3389/fgene.2020.00151

9,987 views
67 citations

Policy and Practice Reviews

Published on 20 Dec 2019

Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

in ELSI in Science and Genetics

Andrea Martani
Lester Darryl Geneviève
Christiane Pauli-Magnus
Stuart McLennan
Bernice Simone Elger

Frontiers in Genetics

doi 10.3389/fgene.2019.01254

21,474 views
27 citations

Original Research

Published on 20 Dec 2019

The African Genomic Medicine Training Initiative (AGMT): Showcasing a Community and Framework Driven Genomic Medicine Training for Nurses in Africa

in ELSI in Science and Genetics

Victoria Nembaware
African Genomic Medicine Training Initiative
Nicola Mulder
Omar Abidi
MB Akanle
Stuart Alvaro Ali
Cliff Asher Aliga
Paballo Chauke
Minnet Cotzee
Collet Dandara

Frontiers in Genetics

doi 10.3389/fgene.2019.01209

15,638 views
36 citations

Brief Research Report

Published on 17 Dec 2019

Using the Findings of a National Survey to Inform the Work of England’s Genomics Education Programme

in ELSI in Science and Genetics

Siobhan Simpson
Anneke Seller
Michelle Bishop

Frontiers in Genetics

doi 10.3389/fgene.2019.01265

5,050 views
19 citations

Original Research

Published on 13 Dec 2019

Conversations Surrounding the Use of DNA Tests in the Family Reunification of Migrants Separated at the United States-Mexico Border in 2018

in ELSI in Science and Genetics

Jennifer K. Wagner
Diana Madden
Valedie Oray
Sara H. Katsanis

Frontiers in Genetics

doi 10.3389/fgene.2019.01232

13,339 views
10 citations

Original Research

Published on 21 Nov 2019

Informing Integration of Genomic Medicine Into Primary Care: An Assessment of Current Practice, Attitudes, and Desired Resources

in ELSI in Science and Genetics

June C. Carroll
Judith Allanson
Shawna Morrison
Fiona A. Miller
Brenda J. Wilson
Joanne A. Permaul
Deanna Telner

Frontiers in Genetics

doi 10.3389/fgene.2019.01189

7,984 views
62 citations

Brief Research Report

Published on 13 Nov 2019

Genomic Education at Scale: The Benefits of Massive Open Online Courses for the Healthcare Workforce

in ELSI in Science and Genetics

Michelle Bishop
Edward Miller
Amelia McPherson
Siobhan Simpson
Stuart Sutherland
Anneke Seller

Frontiers in Genetics

doi 10.3389/fgene.2019.01094

5,006 views
5 citations

Original Research

Published on 12 Nov 2019

Scoping the Scene: What Do Nurses, Midwives, and Allied Health Professionals Need and Want to Know About Genomics?

in ELSI in Science and Genetics

Mona Saleh
Romy Kerr
Kate Dunlop

Frontiers in Genetics

doi 10.3389/fgene.2019.01066

5,550 views
16 citations

Original Research

Published on 08 Nov 2019

Ensuring Best Practice in Genomic Education and Evaluation: A Program Logic Approach

in ELSI in Science and Genetics

Amy Nisselle
Melissa Martyn
Helen Jordan
Nadia Kaunein
Alison McEwen
Chirag Patel
Bronwyn Terrill
Michelle Bishop
Sylvia Metcalfe
Clara Gaff

Frontiers in Genetics

doi 10.3389/fgene.2019.01057

11,958 views
31 citations

Perspective

Published on 05 Nov 2019

DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals

in ELSI in Science and Genetics

Eman Ahmed
Mahsa Shabani

Frontiers in Genetics

doi 10.3389/fgene.2019.01107

15,104 views
34 citations

Original Research

Published on 29 Oct 2019

Genomic Information for Clinicians in the Electronic Health Record: Lessons Learned From the Clinical Genome Resource Project and the Electronic Medical Records and Genomics Network

in ELSI in Science and Genetics

Marc S. Williams
Casey Overby Taylor
Nephi A. Walton
Scott R. Goehringer
Samuel Aronson
Robert R. Freimuth
Luke V. Rasmussen
Eric S. Hall
Cynthia A. Prows
Wendy K. Chung

Frontiers in Genetics

doi 10.3389/fgene.2019.01059

11,654 views
52 citations

Original Research

Published on 10 Oct 2019

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

in ELSI in Science and Genetics

Nchangwi Syntia Munung
Victoria Nembaware
Jantina de Vries
Daima Bukini
Furahini Tluway
Marsha Treadwell
Raphael Zozimus Sangeda
Gaston Mazandu
Mario Jonas
Vivian Paintsil

Frontiers in Genetics

doi 10.3389/fgene.2019.00943

6,584 views
18 citations

Systematic Review

Published on 10 Oct 2019

Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review

in ELSI in Science and Genetics

R. Brian Woodbury
Julie A. Beans
Vanessa Y. Hiratsuka
Wylie Burke

Frontiers in Genetics

doi 10.3389/fgene.2019.00942

6,918 views
13 citations