AUTHOR=Zaratin Paola , Samadzadeh Sara , Seferoğlu Meral , Ricigliano Vito , dos Santos Silva Jonadab , Tunc Abdulkadir , Brichetto Giampaolo , Coetzee Timothy , Helme Anne , Khan Usman , McBurney Robert , Peryer Guy , Weiland Helga , Baneke Peer , Battaglia Mario Alberto , Block Valerie , Capezzuto Luca , Carment Loïc , Cortesi Paolo Angelo , Cutter Gary , Leocani Letizia , Hartung Hans-Peter , Hillert Jan , Hobart Jeremy , Immonen Kaisa , Kamudoni Paul , Middleton Rod , Moghames Patricia , Montalban Xavier , Peeters Liesbet , Sormani Maria Pia , van Tonder Susanna , White Angela , Comi Giancarlo , Vermersch Patrick 

TITLE=The global patient-reported outcomes for multiple sclerosis initiative: bridging the gap between clinical research and care – updates at the 2023 plenary event

JOURNAL=Frontiers in Neurology

VOLUME=Volume 15 - 2024

YEAR=2024

URL=https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1407257

DOI=10.3389/fneur.2024.1407257

ISSN=1664-2295

ABSTRACT=Significant advancements have been achieved in delineating the progress of the Global PROMS (PROMS) Initiative. The PROMS Initiative, a collaborative endeavor by the European Charcot Foundation and the Multiple Sclerosis International Federation, strives to amplify the influence of patient input on MS care and establish a cohesive perspective on Patient-Reported Outcomes (PROs) for diverse stakeholders. This initiative has established an expansive, participatory governance framework launching four dedicated working groups that have made substantive contributions to research, clinical management, eHealth, and healthcare system reform. The