AUTHOR=Norouzkhani Narges , Faramarzi Mahbobeh , Ghodousi Moghadam Sara , Karimi Mohammad Amin , Shokri Shirvani Javad , Bahari Ali , ShojaeiBaghini Mahdie , Eslami Saeid , Tabesh Hamed 

TITLE=Identification of the informational and supportive needs of patients diagnosed with inflammatory bowel disease: a scoping review

JOURNAL=Frontiers in Psychology

VOLUME=Volume 14 - 2023

YEAR=2023

URL=https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2023.1055449

DOI=10.3389/fpsyg.2023.1055449

ISSN=1664-1078

ABSTRACT=Background: Inflammatory Bowel Diseases (IBD) affects the quality of life. Patient education and supportive needs are the crucial components of comprehensive chronic illness care. The main purposes of this review were to (i) explore the informational and supportive needs of these patients in order to improve the quality of life in the existing literature and to (ii) identify the gaps related to the needs of the patients in articles.
Methods: The scoping review is based on the Daudt methodological framework, a modified version of Arksey and O'Malley. Electronic databases were searched extensively from January 2000 to April 30, 2022. Four electronic databases (PubMed/Medline, CINAHL, APA PsycInfo, Psychology and Behavioral Sciences Collection, APA PsycArticles, and ProQuest) were searched using controlled vocabulary, and specific keywords. The searched terms were matched to each database. We manually searched in two key journals, namely the Journal of Inflammatory Bowel Disease and the Journal of Crohn's and Colitis.
Results: In the review, 75 studies were reviewed that assessed the information and support needs of patients with IBD. In this regard, 62 studies reported information needs, and 53 studies reported support needs. Most of the information needs of patients with IBD reported in the studies were related to diets needs, and educational needs were the most essential supportive needs.
Conclusions: Health policymakers and managers can develop care and educational programs related to this disease in health centers according to the needs of the patients. Health professionals, especially gastroenterologists, are the primary referral sources for information on patients. Therefore, gastroenterologists can take the lead in planning and educating the patients and share their decisions.