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ORIGINAL RESEARCH article

Front. Rehabil. Sci.
Sec. Disability, Rehabilitation, and Inclusion
Volume 5 - 2024 | doi: 10.3389/fresc.2024.1340881
This article is part of the Research Topic Co-Design of Rehabilitation Programming View all 8 articles

Bone Health Education in Individuals with Spinal Cord injury or Disease: The Bare Bones Podcast Series: Plan it, Produce it, Post it!

Provisionally accepted
  • 1 The KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, Canada
  • 2 Rehabilitation Sciences Institute, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada
  • 3 Division of Physical Medicine and Rehabilitation, Department of Medicine, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada
  • 4 Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada
  • 5 Canadian Spinal Research Organization, Richmond Hill, Ontario, Canada
  • 6 Institute of Medical Science, University of Toronto, Toronto, Canada
  • 7 Department of Medicine, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, Alberta, Canada

The final, formatted version of the article will be published soon.

    Introduction: The Paralyzed Veterans of America inaugural Clinical Practice Guideline (CPG) for Bone Health and Osteoporosis Management for Individuals with Spinal Cord Injury or Disease (SCI/D) was published in 2022 for a clinician audience. The aim of this project was to develop a podcast series to ensure people with lived experience with SCI/D (PLEX) understand the CPG content and know how to act to reduce their fracture risk. Methods: The “Bare Bones Podcast Series” consists of 9 episodes; one related to each CPG chapter. The podcast content and the questions asked in each podcast were co-developed by PLEX partners (PLEX-P) and the project team. Two PLEX-P acted as cohosts for the series. The invited speaker(s) are CPG chapter authors who participated in an informal dialogue with the hosts. Each podcast closes with a specific action a listener can take to advance their bone health. The related Educational Action Planning Tool (EAT) handouts contain text and infographic information specific to each podcast episode and include key concepts and a specific actionable take home message. Local PLEX reviewers (PLEX-R) were invited to review podcast episodes and EATs and provide their feedback through focus group participation or 1:1 interviews. The project team revised the podcast episodes and the EATs based on feedback from the PLEX-R prior to releasing them online. Results: Nine podcast episodes and related EATs were designed and created collaboratively with three PLEX-P, 22 PLEX-R, 11 CPG chapter authors and the project team. The episodes were entitled: “Introduction to the Bare Bones of Bone Health”; “Fracture 101”; “Blood Tests: a Window into You”; “I See Your Skeleton”; “Vitamin D for all, Calcium for Some”; “Get Moving and Loading”; “Pills or Poisons & Atomic Habits”; “Snap and Crack” and, “Directions for Research”. The Bare Bones Podcast Series was shared through the project website. Conclusions: The podcasts will aid PLEX and their family caregivers to advocate for ongoing bone health assessments and to promote an ongoing dialogue with care team members regarding how to prevent fractures and fracture-related morbidity and mortality.

    Keywords: co-design, Patients with Lived Experience, Bone health, Patient Education, Fracture, Osteoporosis, spinal cord injury

    Received: 19 Nov 2023; Accepted: 23 May 2024.

    Copyright: © 2024 Craven, Kaiser, Blencowe, Jervis-Rademeyer, Boag, Murphy and Miyatani. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Beverley Catharine Craven, The KITE Research Institute, Toronto Rehabilitation Institute, University Health Network, Toronto, Canada

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.