Disorders/differences of sex development (DSD) are congenital conditions where development of chromosomal, gonadal, or anatomic sex is atypical. Because of the complex and irreversible decisions made within pediatric DSD, shared decision making (SDM) is recommended. SDM is a collaborative process where healthcare providers and the patient, or the caregiver(s) of infants and young children: 1) recognize and acknowledge that a decision is required; 2) know and understand the best available evidence concerning the harms and benefits of each option; and that 3) decisions must consider both the provider's guidance and the patient's (or their proxies) values and preferences. Recommendations notwithstanding, there is no empirical evidence that SDM is applied with fidelity within pediatric DSD. This Research Topic covers efforts at filling this gap.
The goal of this Research Topic is to:
1) Provide additional information about SDM approaches and barriers to implementation in pediatric DSD
2) Present examples of SDM research in pediatric DSD
3) Identify SDM research in other areas of pediatrics that can inform interventions within pediatric DSD
4) Broadly discuss the ethics of decision making within pediatric DSD, including the role of SDM
The scope of this Research Topic includes two primary themes: 1) pediatric DSD; and 2) shared decision making. Manuscripts must encompass these two themes to be considered for inclusion. Consistent with the scope of Frontiers in Urology, we encourage submissions of high-quality, novel research or evidence-based commentaries regarding implementation of SDM within pediatric DSD.
Disorders/differences of sex development (DSD) are congenital conditions where development of chromosomal, gonadal, or anatomic sex is atypical. Because of the complex and irreversible decisions made within pediatric DSD, shared decision making (SDM) is recommended. SDM is a collaborative process where healthcare providers and the patient, or the caregiver(s) of infants and young children: 1) recognize and acknowledge that a decision is required; 2) know and understand the best available evidence concerning the harms and benefits of each option; and that 3) decisions must consider both the provider's guidance and the patient's (or their proxies) values and preferences. Recommendations notwithstanding, there is no empirical evidence that SDM is applied with fidelity within pediatric DSD. This Research Topic covers efforts at filling this gap.
The goal of this Research Topic is to:
1) Provide additional information about SDM approaches and barriers to implementation in pediatric DSD
2) Present examples of SDM research in pediatric DSD
3) Identify SDM research in other areas of pediatrics that can inform interventions within pediatric DSD
4) Broadly discuss the ethics of decision making within pediatric DSD, including the role of SDM
The scope of this Research Topic includes two primary themes: 1) pediatric DSD; and 2) shared decision making. Manuscripts must encompass these two themes to be considered for inclusion. Consistent with the scope of Frontiers in Urology, we encourage submissions of high-quality, novel research or evidence-based commentaries regarding implementation of SDM within pediatric DSD.
