About this Research Topic
In the UK, a national survey highlighted that over 40% of patients want to be more actively involved in decisions about their care. Across cancer care, evidence shows that involving patients in decisions about their health will improve their health outcomes and quality of life. The importance of patient-centered health care systems is acknowledged internationally; yet delivery efforts can be complicated, involving clinical practice guideline development, payment reforms, and examination of the organisational structures of health systems.
The traditional paternalistic approach to health care is increasingly outdated, and models of care in urology – as in other healthcare areas – should strive for excellence in care outcomes by ensuring that our patients experience urology care in a way that respects their lived experience. We aim to catalyse this change by bringing together contemporary insights that centralise urology patients and their experiences at the heart of efforts to build models of care that are fit for this century.
To contribute to this important Research Topic we are specifically interested in the following subtopic:
• Community-based participatory research (CBPR) as different way to conduct research. CBPR is an approach to research that involves collective, reflective and systematic inquiry in which researchers and community stakeholders engage as equal partners in all steps of the research process with the goals of educating, improving practice or bringing about social change.
• Patient reported outcomes, patient reported outcome measurement and quality of life research is key to understanding the patient perspective.
• Applied qualitative research i.e. original research (qualitative) focusing on capturing the voice of patients (across urology and across the treatment pathway)
• Patient-centred treatment pathways which includes patient -centred treatments, improvements in decision making, experiences of reformulated models of care post COVID and new approaches to improve the patient journey in clinical care
The traditional paternalistic approach to health care is increasingly outdated, and models of care in urology – as in other healthcare areas – should strive for excellence in care outcomes by ensuring that our patients experience urology care in a way that respects their lived experience. We aim to catalyse this change by bringing together contemporary insights that centralise urology patients and their experiences at the heart of efforts to build models of care that are fit for this century.
To contribute to this important Research Topic we are specifically interested in the following subtopic:
• Community-based participatory research (CBPR) as different way to conduct research. CBPR is an approach to research that involves collective, reflective and systematic inquiry in which researchers and community stakeholders engage as equal partners in all steps of the research process with the goals of educating, improving practice or bringing about social change.
• Patient reported outcomes, patient reported outcome measurement and quality of life research is key to understanding the patient perspective.
• Applied qualitative research i.e. original research (qualitative) focusing on capturing the voice of patients (across urology and across the treatment pathway)
• Patient-centred treatment pathways which includes patient -centred treatments, improvements in decision making, experiences of reformulated models of care post COVID and new approaches to improve the patient journey in clinical care
Keywords: Patient centred care, Shared Decision Making, Community-based participatory researrch, PROMs, PREMs, QoL, Patient-centred treatment pathways
Important Note: All contributions to this Research Topic must be within the scope of the section and journal to which they are submitted, as defined in their mission statements. Frontiers reserves the right to guide an out-of-scope manuscript to a more suitable section or journal at any stage of peer review.
