Research Topic

Life Expectancy and Life Quality Amelioration by Rehabilitation Strategies in Children, Adolescents and Adults with Severe Congenital or Acquired Heart Disease

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About this Research Topic

This Research Topic is focused on rehabilitation in children, adolescents and young adults with heart disease. Heart disease in this population can have very different expressions but is primarily marked by the entity of congenital heart disease (CHD). CHD occurs in about 1% of all newborns and often – in about 80% needs surgical or interventional (or both) corrective or palliative treatment. In children as well as in young adults there may be other affections of the heart such as heart rhythm disorders, cardiomyopathies, myocarditis, aquired structural defects after endocarditis and primary or secondary pulmonary hypertension, often in the context of genetic disorders. These diseases may implicate the need of heart or heart-/lung transplantation, implantation of rhythm devices, artificial heart devices, associated with repeated operations. These operations are nowadays often survived with a good life expectance and potential of quality of life. In order to assure the success of these complicated interventions rehabilitation is essential in the post- and sometimes pre - surgical course. As the affections of the heart and subsequently other organ systems (lung, liver, kidneys, nervous system and intellectual abilities) have a deep impact on the patient in multiple aspects the rehabilitation approach must be pluridisciplinar. Additionally, it is not only the patient who suffers from the disease but often the whole family which necessitates care of the whole family, physically and psychologically. And, especially in adolescents and young adults, vital questions about job search, sexuality, family planning, sports and quality of life become predominant and stipulate professional and elaborate answers.

The aim of this Research topic is to merge expertise from the different participants and researchers in this very heterogeneous domain: physicians, surgeons, technicians, physiotherapists, psychologists and social education workers. They may all contribute to the development of this highly important theme complex with an enormous individual, ethical and – last but not least – economic impact on future society.


Important Note: All contributions to this Research Topic must be within the scope of the section and journal to which they are submitted, as defined in their mission statements. Frontiers reserves the right to guide an out-of-scope manuscript to a more suitable section or journal at any stage of peer review.

This Research Topic is focused on rehabilitation in children, adolescents and young adults with heart disease. Heart disease in this population can have very different expressions but is primarily marked by the entity of congenital heart disease (CHD). CHD occurs in about 1% of all newborns and often – in about 80% needs surgical or interventional (or both) corrective or palliative treatment. In children as well as in young adults there may be other affections of the heart such as heart rhythm disorders, cardiomyopathies, myocarditis, aquired structural defects after endocarditis and primary or secondary pulmonary hypertension, often in the context of genetic disorders. These diseases may implicate the need of heart or heart-/lung transplantation, implantation of rhythm devices, artificial heart devices, associated with repeated operations. These operations are nowadays often survived with a good life expectance and potential of quality of life. In order to assure the success of these complicated interventions rehabilitation is essential in the post- and sometimes pre - surgical course. As the affections of the heart and subsequently other organ systems (lung, liver, kidneys, nervous system and intellectual abilities) have a deep impact on the patient in multiple aspects the rehabilitation approach must be pluridisciplinar. Additionally, it is not only the patient who suffers from the disease but often the whole family which necessitates care of the whole family, physically and psychologically. And, especially in adolescents and young adults, vital questions about job search, sexuality, family planning, sports and quality of life become predominant and stipulate professional and elaborate answers.

The aim of this Research topic is to merge expertise from the different participants and researchers in this very heterogeneous domain: physicians, surgeons, technicians, physiotherapists, psychologists and social education workers. They may all contribute to the development of this highly important theme complex with an enormous individual, ethical and – last but not least – economic impact on future society.


Important Note: All contributions to this Research Topic must be within the scope of the section and journal to which they are submitted, as defined in their mission statements. Frontiers reserves the right to guide an out-of-scope manuscript to a more suitable section or journal at any stage of peer review.

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