Rheumatic and musculoskeletal diseases are characterized by a relevant impact on quality of life (QoL) and also by high levels of psychological distress. Health??related QoL is a rapidly evolving field of research and literature data suggest that the relationship among disease activity/damage, workability and psychological well- being is not always simple to explore; as a matter of fact, in many cases there are no disease- specific tools able to detect the real impact of the disease on all the dimensions of the patients’ and caregivers’ lives. QoL of rheumatic patients must include education for a correct nutrition and physical activities, that represent crucial aspects and are frequently negletted or superficially considered.
Therefore, integrating QoL patient- reported outcome measures (PROMs) into standard clinical practice of rheumatic patients may also offer the prospective to improve the healthcare system and make it actually patient- centered.
The main purpose of this Research Topic is to highlight the burden of psychological impact and methods for optimisation of QoL in patients, families and caregivers living with rheumatic musculoskeletal diseases.
Addressing the needs of patients as persons living with a rheumatic disease is crucial to ensure that all aspects of the lives of patients are taken into account in the management process. In this scenario, assessing and improving the QoL of patients should be a priority of the scientific community that with this supplement can progress in co- creating new knowledge and improve awareness together with all the most relevant stakeholders, especially the community of patients, families and caregivers.
The Research Topic would preferably address the following topics: psychological dimensions, QoL, PROMs, workability and lifestyle, including nutrition and physical activities. Other topics might be considered based on the impact of the topic proposed. The inclusion of the patients' views and perspectives is highly encouraged whenever possible to ensure the patient- centricity of the studies.
Disease Coverage: systemic autoimmune diseases.
Rheumatic and musculoskeletal diseases are characterized by a relevant impact on quality of life (QoL) and also by high levels of psychological distress. Health??related QoL is a rapidly evolving field of research and literature data suggest that the relationship among disease activity/damage, workability and psychological well- being is not always simple to explore; as a matter of fact, in many cases there are no disease- specific tools able to detect the real impact of the disease on all the dimensions of the patients’ and caregivers’ lives. QoL of rheumatic patients must include education for a correct nutrition and physical activities, that represent crucial aspects and are frequently negletted or superficially considered.
Therefore, integrating QoL patient- reported outcome measures (PROMs) into standard clinical practice of rheumatic patients may also offer the prospective to improve the healthcare system and make it actually patient- centered.
The main purpose of this Research Topic is to highlight the burden of psychological impact and methods for optimisation of QoL in patients, families and caregivers living with rheumatic musculoskeletal diseases.
Addressing the needs of patients as persons living with a rheumatic disease is crucial to ensure that all aspects of the lives of patients are taken into account in the management process. In this scenario, assessing and improving the QoL of patients should be a priority of the scientific community that with this supplement can progress in co- creating new knowledge and improve awareness together with all the most relevant stakeholders, especially the community of patients, families and caregivers.
The Research Topic would preferably address the following topics: psychological dimensions, QoL, PROMs, workability and lifestyle, including nutrition and physical activities. Other topics might be considered based on the impact of the topic proposed. The inclusion of the patients' views and perspectives is highly encouraged whenever possible to ensure the patient- centricity of the studies.
Disease Coverage: systemic autoimmune diseases.
