PERSPECTIVE article
Front. Child Adolesc. Psychiatry
Sec. Autism and Other Neurodevelopmental Disorders
Volume 4 - 2025 | doi: 10.3389/frcha.2025.1682129
Rethinking Self-Identification in Neurodivergent Communities: Barriers, Harms, and the Need for Change
Provisionally accepted- 1Manchester University NHS Foundation Trust, Manchester, United Kingdom
- 2The University of Manchester, Manchester, United Kingdom
- 3Expert by Experience and Independent Researcher, Cardiff, United Kingdom
- 4University College London Research Department of Clinical Educational and Health Psychology, London, United Kingdom
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Self-identification of neurodivergence is increasingly common, yet remains contentious in psychiatric, medical, and public discourse. While concerns have been raised about the reliability and potential impact on clinical services, these discussions often neglect the systemic barriers and personal experiences that can lead to self-identification in the first place. This article explores why individuals might self-identify, highlighting inequities in diagnostic access and clinician biases, as well as individual experiences and beliefs around clinical diagnosis. We argue that while self-identification can be a personal preference, it is often a survival strategy in the face of inaccessible, exclusionary, and sometimes harmful diagnostic systems. Drawing on theories of epistemic justice, we critique medical gatekeeping that delegitimises self-identification and propose a shift towards neurodiversity-affirming care. Rather than policing self-identification, we suggest that efforts should be made to address structural failures that render it necessary. Until access to clinical diagnosis become equitable, self-identification will remain an essential and legitimate means of understanding neurodivergence.
Keywords: autism, ADHD, Neurodivergence, self-diagnosis, self-identity
Received: 08 Aug 2025; Accepted: 29 Sep 2025.
Copyright: © 2025 Newton, Flinn, Downs and Richmond. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Aidan Flinn, aidan.flinn@postgrad.manchester.ac.uk
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