ORIGINAL RESEARCH article
Front. Med.
Sec. Healthcare Professions Education
Volume 12 - 2025 | doi: 10.3389/fmed.2025.1635290
Pioneering the IBD Specialist Nurse Role in China: A Shared Decision-making Model for Clinical Practice Innovation
Provisionally accepted
- 1Department of Nursing, The Second Affiliated Hospital Zhejiang University School of Medicine, Hangzhou, China
- 2The Second Affiliated Hospital Zhejiang University School of Medicine, Hangzhou, China
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Background: Inflammatory bowel disease (IBD) is a chronic condition characterized by the need for highly individualized treatment plans, requiring patients to make numerous complex medical decisions. Shared decision-making (SDM) has proven effective in improving treatment outcomes, patient satisfaction, and adherence in IBD management; however, its clinical implementation remains challenging. In China, formal SDM nurse roles have not yet been established. Aim: To establish an IBD specialist nurse position to facilitate the effective implementation of SDM in IBD care, enhance patient engagement in disease management, and improve the overall quality of IBD care in China. Methods: Since March 2021, the Second Affiliated Hospital, School of Medicine, Zhejiang University has actively promoted the establishment of the IBD specialist nurse role. This initiative defined the organizational structure, selection criteria and processes, role functions, core competencies, and training and assessment standards for the position. Guided by the Ottawa Decision Support Framework, the responsibilities of the IBD specialist nurse within the SDM model were clarified, offering new strategies and practical approaches for IBD patient management. Results: Between March 2021 and March 2024, the IBD specialist nurse managed 2,028 patient visits, including 1,352 cases of Crohn's disease and 676 cases of ulcerative colitis. These included patients who were newly diagnosed, perioperative, in the preconception stage or pregnant, receiving biological therapies, or requiring vaccinations. Decision conflict assessments in 121 perioperative patients demonstrated lower conflict levels compared to previous studies. "Annual team recognition" of the IBD nursing role reached 94.12%. Additionally, the IBD specialist nurse played a pivotal role in nursing discipline development by establishing clinical protocols, revising practice guidelines, enhancing patient education materials, and participating actively in quality improvement initiatives and research projects. Conclusion: Our center successfully established the IBD specialist nurse role within the SDM framework, resulting in reduced patient decision conflict, improved treatment adherence, and enhanced quality of life. Future efforts will focus on refining the role evaluation system, optimizing training and promotion strategies, and strengthening policy support to further advance the professional development and broader implementation of IBD specialist nurses, thereby improving IBD management and healthcare delivery.
Keywords: shared decision-making, Nurse, inflammatory bowel disease, IBD, clinical practice
Received: 28 May 2025; Accepted: 04 Aug 2025.
Copyright: © 2025 Li, Ni, Ma, Chen and Sun. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Hongling Sun, Department of Nursing, The Second Affiliated Hospital Zhejiang University School of Medicine, Hangzhou, China
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