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ORIGINAL RESEARCH article

Front. Psychiatry
Sec. Autism
Volume 15 - 2024 | doi: 10.3389/fpsyt.2024.1390430

Development and evaluation of a family-child reading picture book on reducing autism spectrum disorder caregivers' psychological stress: A mixed method study

Provisionally accepted
Lei Yang Lei Yang 1Jinlin Ye Jinlin Ye 1*Hongrui Zhu Hongrui Zhu 2Yao Tang Yao Tang 1*Xianhong Li Xianhong Li 1*
  • 1 Central South University, Changsha, China
  • 2 Hainan Medical University, Haikou, Hainan Province, China

The final, formatted version of the article will be published soon.

    The rapid increasing prevalence of ASD has become a significant global health issue. Caregivers of children with autism are experiencing higher level of psychological stress and mental disorders. However, interventions to improve the psychological health of caregivers of children with autism have largely been neglected. Methods: Based on the ADDIE (Analysis, Design, Development, Implementation, and Evaluation) model, we initially did in-depth interviews with 8 caregivers, and conducted field observation in two rehabilitation centers to analyze the daily lives, the empowered components, the emotional moments of the children with autism and their caregivers. Then we designed the outline of the picture book, and developed it by a multi-disciplinary team by 4 rounds. After that, this picture book was sent out to 54 caregivers of children with ASD for family-child reading in one month. A quantitative questionnaire was administered before and after their reading to evaluate the efficacy of reducing their stress and affiliate stigma, and improving self-efficacy, resilience, empowerment capacity; and exit interviews were conducted after their initial reading to assess the acceptability, content appropriateness , perceived benefits and generalizability of this picture book. Quantitative data were analyzed by descriptive analysis and paired t-tests using IBM SPSS 26.0. Qualitative data were analyzed using template analysis. Results: In total, 54 caregivers read the picture book with their child, with the total of 149 (an average of 2.76 per family) times reading in one month.Among them, 39 caregivers returned the following-up questionnaires. Although most of the outcome measures did not showed significant changes except the stress level decreased statistically significant (13.38±3.864 to 11.79±3.238, P=0.001), caregivers reported that the picture book echoed their daily lives and gave them a sense of warmth, inspiration, and hope, as well as some insight on family relationships and attitudes towards the disease. They also expressed a willingness to disseminate the book to other families with children suffering ASD and the public. Conclusion: This specially designed picture book has been proven to be an acceptable, content-appropriate, and effective family-centered psychological intervention, which could be easily scaled up.

    Keywords: Autism spectrum Disorder1, Caregivers2, Psychological Empowerment3, Picture book4, ADDIE5

    Received: 26 Feb 2024; Accepted: 22 Apr 2024.

    Copyright: © 2024 Yang, Ye, Zhu, Tang and Li. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence:
    Jinlin Ye, Central South University, Changsha, China
    Yao Tang, Central South University, Changsha, China
    Xianhong Li, Central South University, Changsha, China

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.