Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 16 Jun 2023

Competencies of the UK nursing and midwifery workforce to mainstream genomics in the National Health Service: the ongoing gap between perceived importance and confidence in genomics

in ELSI in Science and Genetics

Catherine Carpenter-Clawson
Melanie Watson
Alison Pope
Kathleen Lynch
Tracie Miles
Dany Bell
Maureen Talbot
Aniko Varadi

Frontiers in Genetics

doi 10.3389/fgene.2023.1125599

8,756 views
14 citations

Perspective

Published on 14 Jun 2023

Utilization of genetic information for medicines development and equitable benefit sharing

in ELSI in Science and Genetics

Kotone Matsuyama
Chieko Kurihara
Francis P. Crawley
Sandor Kerpel-Fronius

Frontiers in Genetics

doi 10.3389/fgene.2023.1085864

3,159 views
3 citations

Original Research

Published on 08 Jun 2023

Core issues, case studies, and the need for expanded Legacy African American genomics

in ELSI in Science and Genetics

Fatimah Jackson
Carter Clinton
Jennifer Caldwell

Frontiers in Genetics

doi 10.3389/fgene.2023.843209

7,231 views
2 citations

Opinion

Published on 30 May 2023

AI-driven risk scores: should social scoring and polygenic scores based on ethnicity be equally prohibited?

in ELSI in Science and Genetics

Aviad Raz
Jusaku Minari

Frontiers in Genetics

doi 10.3389/fgene.2023.1169580

5,183 views
4 citations

Opinion

Published on 23 May 2023

Challenges to sharing sample metadata in computational genomics

in ELSI in Science and Genetics

Nathan C. Sheffield
Nathan J. LeRoy
Oleksandr Khoroshevskyi

Frontiers in Genetics

doi 10.3389/fgene.2023.1154198

3,171 views
5 citations

Review

Published on 19 May 2023

The Pandora’s box of transparency opened by direct-to-consumer genetic testing

in ELSI in Science and Genetics

Garbiñe Saruwatari Zavala

Frontiers in Genetics

doi 10.3389/fgene.2023.1175666

10,163 views
3 citations

Original Research

Published on 16 May 2023

Toward an open access genomics database of South Africans: ethical considerations

in ELSI in Science and Genetics

Amy Gooden
Donrich Thaldar

Frontiers in Genetics

doi 10.3389/fgene.2023.1166029

3,454 views
4 citations

Systematic Review

Published on 12 May 2023

Ethical and legal challenges in nanomedical innovations: a scoping review

in ELSI in Science and Genetics

Sophia Wasti
Il Ho Lee
Sumin Kim
Jae-Hyun Lee
Hannah Kim

Frontiers in Genetics

doi 10.3389/fgene.2023.1163392

20,083 views
54 citations

Policy and Practice Reviews

Published on 09 May 2023

Privacy and utility of genetic testing in families with hereditary cancer syndromes living in three countries: the international cascade genetic screening experience

in ELSI in Science and Genetics

Sivia Barnoy
Efrat Dagan
Sue Kim
Maria Caiata-Zufferey
Maria C. Katapodi
the CASCADE
the K-CASCADE Consortia

Frontiers in Genetics

doi 10.3389/fgene.2023.1109431

3,341 views
7 citations

Original Research

Published on 24 Apr 2023

Public knowledge of and attitudes toward genetics and genetic testing in Brunei Darussalam

in ELSI in Science and Genetics

Hazreana Jaya
Siti Nur Idayu Matusin
Aklimah Mustapa
Muhammad Syafiq Abdullah
Mas Rina Wati Haji Abdul Hamid

Frontiers in Genetics

doi 10.3389/fgene.2023.1181240

5,258 views
4 citations

Perspective

Published on 31 Mar 2023

Maximizing the utility of public data

in ELSI in Science and Genetics

Mahmoud Ahmed
Hyun Joon Kim
Deok Ryong Kim

Frontiers in Genetics

doi 10.3389/fgene.2023.1106631

4,064 views
2 citations

Opinion

Published on 20 Mar 2023

Opportunities and challenges in sharing and reusing genomic interval data

in ELSI in Science and Genetics

Bingjie Xue
Oleksandr Khoroshevskyi
R. Ariel Gomez
Nathan C. Sheffield

Frontiers in Genetics

doi 10.3389/fgene.2023.1155809

2,478 views
15 citations

Review

Published on 13 Mar 2023

FAIR human neuroscientific data sharing to advance AI driven research and applications: Legal frameworks and missing metadata standards

in ELSI in Science and Genetics

Aaron Reer
Andreas Wiebe
Xu Wang
Jochem W. Rieger

Frontiers in Genetics

doi 10.3389/fgene.2023.1086802

6,144 views
9 citations

Original Research

Published on 23 Feb 2023

Public perceptions and attitudes of the national project of bio-big data: A nationwide survey in the Republic of Korea

in ELSI in Science and Genetics

Ji Hyun Yang
Hannah Kim
Ilhak Lee

Frontiers in Genetics

doi 10.3389/fgene.2023.1081812

3,862 views
2 citations

Original Research

Published on 03 Feb 2023

Strategies to improve healthcare services for patients with sickle cell disease in Nigeria: The perspectives of stakeholders

in ELSI in Science and Genetics

Hezekiah Isa
Emmanuel Okocha
Samuel Ademola Adegoke
Uche Nnebe-Agumadu
Aisha Kuliya-Gwarzo
Alayo Sopekan
Akinyemi Olugbenga Ofakunrin
Ngozi Ugwu
Abdul-Aziz Hassan
Chinatu Ohiaeri

Frontiers in Genetics

doi 10.3389/fgene.2023.1052444

9,061 views
4 citations

Perspective

Published on 26 Jan 2023

Ethical layering in AI-driven polygenic risk scores—New complexities, new challenges

in ELSI in Science and Genetics

Marie-Christine Fritzsche
Kaya Akyüz
Mónica Cano Abadía
Stuart McLennan
Pekka Marttinen
Michaela Th. Mayrhofer
Alena M. Buyx

Frontiers in Genetics

doi 10.3389/fgene.2023.1098439

8,817 views
17 citations