Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 23 Feb 2023

Public perceptions and attitudes of the national project of bio-big data: A nationwide survey in the Republic of Korea

in ELSI in Science and Genetics

Ji Hyun Yang
Hannah Kim
Ilhak Lee

Frontiers in Genetics

doi 10.3389/fgene.2023.1081812

3,760 views
2 citations

Original Research

Published on 03 Feb 2023

Strategies to improve healthcare services for patients with sickle cell disease in Nigeria: The perspectives of stakeholders

in ELSI in Science and Genetics

Hezekiah Isa
Emmanuel Okocha
Samuel Ademola Adegoke
Uche Nnebe-Agumadu
Aisha Kuliya-Gwarzo
Alayo Sopekan
Akinyemi Olugbenga Ofakunrin
Ngozi Ugwu
Abdul-Aziz Hassan
Chinatu Ohiaeri

Frontiers in Genetics

doi 10.3389/fgene.2023.1052444

8,832 views
3 citations

Perspective

Published on 26 Jan 2023

Ethical layering in AI-driven polygenic risk scores—New complexities, new challenges

in ELSI in Science and Genetics

Marie-Christine Fritzsche
Kaya Akyüz
Mónica Cano Abadía
Stuart McLennan
Pekka Marttinen
Michaela Th. Mayrhofer
Alena M. Buyx

Frontiers in Genetics

doi 10.3389/fgene.2023.1098439

8,410 views
16 citations

Original Research

Published on 23 Jan 2023

Ancestry: How researchers use it and what they mean by it

in ELSI in Science and Genetics

Bege Dauda
Santiago J. Molina
Danielle S. Allen
Agustin Fuentes
Nayanika Ghosh
Madelyn Mauro
Benjamin M. Neale
Aaron Panofsky
Mashaal Sohail
Sarah R. Zhang

Frontiers in Genetics

doi 10.3389/fgene.2023.1044555

12,753 views
15 citations

Review

Published on 19 Jan 2023

A review of ancestrality and admixture in Latin America and the caribbean focusing on native American and African descendant populations

in ELSI in Science and Genetics

Thais C. De Oliveira
Rodrigo Secolin
Iscia Lopes-Cendes

Frontiers in Genetics

doi 10.3389/fgene.2023.1091269

18,705 views
22 citations

Original Research

Published on 11 Jan 2023

Governing biotechnology to provide safety and security and address ethical, legal, and social implications

in ELSI in Science and Genetics

Benjamin Trump
Christopher Cummings
Kasia Klasa
Stephanie Galaitsi
Igor Linkov

Frontiers in Genetics

doi 10.3389/fgene.2022.1052371

23,363 views
24 citations

Perspective

Published on 10 Jan 2023

Democratizing clinical-genomic data: How federated platforms can promote benefits sharing in genomics

in ELSI in Science and Genetics

Maria Alvarellos
Hadley E. Sheppard
Ingrid Knarston
Craig Davison
Nathaniel Raine
Thorben Seeger
Pablo Prieto Barja
Maria Chatzou Dunford

Frontiers in Genetics

doi 10.3389/fgene.2022.1045450

8,035 views
17 citations

Original Research

Published on 01 Dec 2022

Gender bias and menstrual blood in stem cell research: A review of pubmed articles (2008–2020)

in ELSI in Science and Genetics

Daniela Tonelli Manica
Karina Dutra Asensi
Gaia Mazzarelli
Bernardo Tura
Germana Barata
Regina Coeli Santos Goldenberg

Frontiers in Genetics

doi 10.3389/fgene.2022.957164

4,107 views

Editorial

Published on 29 Nov 2022

Editorial: COVID-19 pandemics: Ethical, legal and social issues

in ELSI in Science and Genetics

Dov Greenbaum
David Gurwitz
Yann Joly

Frontiers in Genetics

doi 10.3389/fgene.2022.1021865

4,383 views
2 citations

Original Research

Published on 17 Nov 2022

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members

in ELSI in Science and Genetics

Erisa Sabakaki Mwaka
Godfrey Bagenda
Deborah Ekusai Sebatta
Sylvia Nabukenya
Ian Munabi

Frontiers in Genetics

doi 10.3389/fgene.2022.1037401

4,205 views
5 citations

Perspective

Published on 11 Nov 2022

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

in ELSI in Science and Genetics

Stephanie Russo Carroll
Rebecca Plevel
Lydia L. Jennings
Ibrahim Garba
Rogena Sterling
Felina M. Cordova-Marks
Vanessa Hiratsuka
Maui Hudson
Nanibaa’ A. Garrison

Frontiers in Genetics

doi 10.3389/fgene.2022.1052620

6,378 views
25 citations

Original Research

Published on 09 Nov 2022

The multidimensional legal nature of personal genomic sequence data: A South African perspective

in ELSI in Science and Genetics

Donrich W. Thaldar
Beverley A. Townsend
Dusty-Lee Donnelly
Marietjie Botes
Amy Gooden
Joanne van Harmelen
Bonginkosi Shozi

Frontiers in Genetics

doi 10.3389/fgene.2022.997595

5,409 views
14 citations

Policy and Practice Reviews

Published on 24 Oct 2022

From the patient to the population: Use of genomics for population screening

in ELSI in Science and Genetics

Chloe Mighton
Salma Shickh
Vernie Aguda
Suvetha Krishnapillai
Ella Adi-Wauran
Yvonne Bombard

Frontiers in Genetics

doi 10.3389/fgene.2022.893832

5,388 views
14 citations

Editorial

Published on 21 Oct 2022

Editorial: Ethical and regulatory challenges in genetic and genomic research involving stored biological specimens

in ELSI in Science and Genetics

Nut Koonrungsesomboon
Kenji Hirayama

Frontiers in Genetics

doi 10.3389/fgene.2022.1062188

1,374 views
2 citations

Policy and Practice Reviews

Published on 13 Oct 2022

Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago

in ELSI in Science and Genetics

Jae Joseph Russell B. Rodriguez
John Meldwin D. Cuales
Michael James B. Herrera
Louward Allen M. Zubiri
Richard N. Muallil
Altan I. Ishmael
Edlyn B. Jimenez
Mark Stoneking
Maria Corazon A. De Ungria

Frontiers in Genetics

doi 10.3389/fgene.2022.901515

13,411 views
2 citations

Hypothesis and Theory

Published on 12 Oct 2022

Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective

in ELSI in Science and Genetics

Cornelius Ewuoso
Allan Sudoi
Dorcas Kamuya

Frontiers in Genetics

doi 10.3389/fgene.2022.1014120

2,796 views
6 citations