Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 10 Jul 2024

Test-takers’ perspectives on consumer genetic testing for hereditary cancer risk

in ELSI in Science and Genetics

Madison K. Kilbride
Lisa Jay Kessler
Brigitte Cronier
Jacqueline J. Park
Cara N. Cacioppo
Jordyn Beem
Angela R. Bradbury

Frontiers in Genetics

doi 10.3389/fgene.2024.1374602

1,833 views
2 citations

Perspective

Published on 09 Jul 2024

“Identity theft” in BRCA1/2: impact of positive genetic test results and risk-reducing interventions

in ELSI in Science and Genetics

Jonathan M. Adler
Sharlene Hesse-Biber
Memnun Seven
Andrew A. Dwyer

Frontiers in Genetics

doi 10.3389/fgene.2024.1380637

1,548 views

Original Research

Published on 14 Jun 2024

Risk mapping for better governance in biobanking: the case of biobank.cy

in ELSI in Science and Genetics

Kaya Akyüz
Melanie Goisauf
Gillian M. Martin
Michaela Th. Mayrhofer
Stella Antoniou
Georgia Charalambidou
Constantinos Deltas
Apostolos Malatras
Gregory Papagregoriou
Charalambos Stefanou

Frontiers in Genetics

doi 10.3389/fgene.2024.1397156

1,926 views
1 citation

Hypothesis and Theory

Published on 30 May 2024

The open ontology and information society

in ELSI in Science and Genetics

Meshandren Naidoo

Frontiers in Genetics

doi 10.3389/fgene.2024.1290658

1,670 views
2 citations

Original Research

Published on 17 May 2024

Genetic tests as the strongest motivator of cooperation between participants and biobanks–Findings from cross-sectional study

in ELSI in Science and Genetics

Anita Majchrowska
Jakub Pawlikowski
Jarosław Sak
Blanka Świerczyńska
Magdalena Suchodolska

Frontiers in Genetics

doi 10.3389/fgene.2024.1321690

1,096 views

Perspective

Published on 04 Apr 2024

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

in ELSI in Science and Genetics

Tsung-Ling Lee
Tsutomu Sawai

Frontiers in Genetics

doi 10.3389/fgene.2024.1381172

3,323 views
2 citations

Original Research

Published on 03 Apr 2024

Introducing dynamic consent for improved trust and privacy in research involving human biological material and associated data in South Africa

in ELSI in Science and Genetics

Larisse Prinsen

Frontiers in Genetics

doi 10.3389/fgene.2024.1272924

2,486 views
1 citation

Perspective

Published on 19 Feb 2024

Typological thinking in human genomics research contributes to the production and prominence of scientific racism

in ELSI in Science and Genetics

Kevin A. Bird
Jedidiah Carlson

Frontiers in Genetics

doi 10.3389/fgene.2024.1345631

4,153 views
9 citations

Perspective

Published on 31 Jan 2024

The use of race terms in epigenetics research: considerations moving forward

in ELSI in Science and Genetics

Dillon E. King
Pooja D. Lalwani
Gilberto Padilla Mercado
Emma L. Dolan
Johnna M. Frierson
Joel N. Meyer
Susan K. Murphy

Frontiers in Genetics

doi 10.3389/fgene.2024.1348855

5,240 views
3 citations

Original Research

Published on 26 Jan 2024

Access, autonomy, and affordability: ethical and human rights issues surrounding multigene panel testing for cancer in Japan and Switzerland

in ELSI in Science and Genetics

Kate Nakasato
Carlotta Manz
Kazuto Kato

Frontiers in Genetics

doi 10.3389/fgene.2024.1343720

2,798 views

Perspective

Published on 08 Jan 2024

ACCESS: an empirically-based framework developed by the International Nursing CASCADE Consortium to address genomic disparities through the nursing workforce

in ELSI in Science and Genetics

Maria C. Katapodi
Carla Pedrazzani
Sivia Barnoy
Efrat Dagan
Muriel Fluri
Tarsha Jones
Sue Kim
Meghan L. Underhill-Blazey
Melissa K. Uveges
Andrew A. Dwyer

Frontiers in Genetics

doi 10.3389/fgene.2023.1337366

2,768 views
5 citations

Original Research

Published on 03 Jan 2024

Genetics in the X-Men film franchise: mutants as allegories of difference

in ELSI in Science and Genetics

Sonora R. Grimsted
Katerina G. Krizner
Cynthia D. Porter
Jay Clayton

Frontiers in Genetics

doi 10.3389/fgene.2023.1331905

12,287 views
1 citation

Perspective

Published on 11 Dec 2023

Science fiction and ELSI: three thoughts

in ELSI in Science and Genetics

Henry T. Greely

Frontiers in Genetics

doi 10.3389/fgene.2023.1270590

1,837 views
1 citation

Original Research

Published on 06 Dec 2023

A data management plan for the NESHIE observational study

in ELSI in Science and Genetics

Adéle Strydom
Jeanne Van Rensburg
Michael S. Pepper

Frontiers in Genetics

doi 10.3389/fgene.2023.1273975

2,435 views

Policy and Practice Reviews

Published on 28 Nov 2023

Bridging the gap: returning genetic results to indigenous communities in Latin America

in ELSI in Science and Genetics

Epifanía Arango-Isaza
María José Aninao
Roberto Campbell
Felipe I. Martínez
Kentaro K. Shimizu
Chiara Barbieri

Frontiers in Genetics

doi 10.3389/fgene.2023.1304974

7,256 views
3 citations

Original Research

Published on 28 Nov 2023

A conceptual analysis of public opinion regarding genome research in Japan

in ELSI in Science and Genetics

Shibly Shahrier
Hristina Gaydarska
Kayo Takashima
Go Yoshizawa
Jusaku Minari

Frontiers in Genetics

doi 10.3389/fgene.2023.1170794

2,215 views
1 citation