ORIGINAL RESEARCH article
Front. Health Serv.
Sec. Implementation Science
Volume 5 - 2025 | doi: 10.3389/frhs.2025.1550729
Trust, consistency and transparency: In-home respite needs and preferences of people living with dementia and their carers
Provisionally accepted
- 1Wesley Research Institute, Brisbane, Australia
- 2The University of Queensland, Brisbane, Queensland, Australia
- 3BlueCare, Brisbane, Australia
- 4Charles Darwin University, Darwin, Northern Territory, Australia
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Purpose: To identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design and implementation of an in-home respite service.Design/Methodology: Exploratory, interpretivist, pre-implementation qualitative study using Consolidated Framework for Implementation Research.Participants: People living with dementia and carers.Data collection: multi-person and individual semi-structured interviews.Findings: 15 participants: Four people living with dementia, 11 carers. Carers are exhausted and want a say in the development and delivery of services. People living with dementia and carers need safety, trust in respite staff and in the organisation, consistency, additional supports, and clear, transparent communication.Future directions: Findings will inform in-home dementia respite models of care, better supporting family carers and people living with dementia to age-in-place. Recommendations: provide an orientation session; clear, transparent communication; provide/refer carers to wrap-around supports; ensure consistency including having consistent carers, arrival times, services provided and routines; emergency and scheduled options.
Keywords: Dementia, Respite, aged care, in-home respite, implementation science, family carers, Health Services Research
Received: 23 Dec 2024; Accepted: 13 Jun 2025.
Copyright: © 2025 Grogan, Harriman, Martin, Waite and Fisher. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Caroline Grogan, Wesley Research Institute, Brisbane, Australia
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