Frontiers in Genetics | ELSI in Science and Genetics

Review

Published on 10 Sep 2026

The European Health Data Space and biobanking in Europe: synergies, tensions and the future governance of data-driven health research

in ELSI in Science and Genetics

Laura Grech
Nikolai Paul Pace

Frontiers in Genetics

doi 10.3389/fgene.2026.1932078

1,044 views

Original Research

Published on 09 Sep 2026

Perceptions of and willingness to participate in genomics research among a U.S. sample

in ELSI in Science and Genetics

Emerson Dusic
Devin Madden
Isabella E. Rios
Bo J. Hwang
Sima Rabinowitz
Michelle A. Ramos
David R. Pletta
Rodrigo A. Aguayo-Romero
Mitchell R. Lunn
Kellan Baker

Frontiers in Genetics

doi 10.3389/fgene.2026.1808576

687 views

Perspective

Accepted on 07 Sep 2026

Biobanking Across Africa: From Participant-Level Trust to Institutional Trustworthiness

in ELSI in Science and Genetics

Aisha Sallah
Salma Tarmoun
Krishna Gajjar
Patience Yeboah
Bernard Abakah
Dimitris Boufidis

Frontiers in Genetics

120 views

Brief Research Report

Published on 03 Sep 2026

Opportunities to cultivate trust through communication behaviors

in ELSI in Science and Genetics

Mary Carol Barks
Claire Yballa
Alexandra Linker
Chau Amoeni
Gabrielle Cua
Malley Craig
Bridget Hein
Thomas May

Frontiers in Genetics

doi 10.3389/fgene.2026.1847245

765 views

Correction

Accepted on 02 Sep 2026

Correction: A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction

in ELSI in Science and Genetics

Julie A Beans
Jessica Blanchard
Vanessa Hiratsuka
Taiawagi Helton
Stephanie Carroll
Denise Dillard
Raymond Orr
Francine C Gachupin
Sara Hull
Rodney C Haring

Frontiers in Genetics

139 views

Original Research

Published on 31 Aug 2026

A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction

in ELSI in Science and Genetics

Julie A. Beans
Jessica W. Blanchard
Vanessa Y. Hiratsuka
Taiawagi Helton
Stephanie Russo Carroll
Denise A. Dillard
Raymond Orr
Francine C. Gachupin
Sara C. Hull
Rodney C. Haring

Frontiers in Genetics

doi 10.3389/fgene.2026.1802493

1,073 views

Perspective

Accepted on 20 Aug 2026

From Prohibition to Integration: LLMs in Scientific Publishing

in ELSI in Science and Genetics

Boris Kirov
Aleksandar Marinchev
Slavil Peykov
Vassil Galabov

Frontiers in Genetics

328 views

Original Research

Published on 07 Aug 2026

Confusion, communication, and consent: ELSI barriers to genomics-enhanced remediation in Alberta’s oil sands

in ELSI in Science and Genetics

Michelle Tilford-Shaw
Max Pospisil
Lori Bradford
Graham Strickert
Diane Dupont

Frontiers in Genetics

doi 10.3389/fgene.2026.1889489

1,032 views

Perspective

Published on 29 Jul 2026

Digital death and posthumous data: a glocal, relational perspective

in ELSI in Science and Genetics

Adela Toplean

Frontiers in Genetics

doi 10.3389/fgene.2026.1885207

1,464 views

Editorial

Published on 10 Jul 2026

Editorial: Insights in ELSI in science and genetics 2024–2025

in ELSI in Science and Genetics

Dov Greenbaum

Frontiers in Genetics

doi 10.3389/fgene.2026.1897499

1,505 views

Perspective

Published on 30 Jun 2026

Rethinking scale in AI-driven genomic medicine – The role of small biobanks

in ELSI in Science and Genetics

Laura Grech
Nikolai Paul Pace

Frontiers in Genetics

doi 10.3389/fgene.2026.1903325

1,559 views

Original Research

Published on 11 Jun 2026

Japanese attitudes toward human brain organoid research: broad support amid ethical concerns

in ELSI in Science and Genetics

Tsutomu Sawai
Mayu Koike
Masanori Kataoka

Frontiers in Genetics

doi 10.3389/fgene.2026.1788161

1,818 views
1 citation

Original Research

Published on 03 Jun 2026

Biobank consent preferences and implications for a mixed consent model: biomedical researchers vs. community stakeholders in a semi-urban Yoruba community, Nigeria

in ELSI in Science and Genetics

Olubunmi A. Ogunrin

Frontiers in Genetics

doi 10.3389/fgene.2026.1779086

1,519 views

Perspective

Published on 30 Apr 2026

Non-death loss and GenAI: ethical reflections on griefbots of the living

in ELSI in Science and Genetics

Alexander Manevich
Yuval Haber

Frontiers in Genetics

doi 10.3389/fgene.2026.1825398

2,658 views

Policy and Practice Reviews

Published on 18 Mar 2026

Achieving bottom-up ethical, legal, and societal implications and responsible research and innovation in the synthetic biology research community from the Japanese context

in ELSI in Science and Genetics

Makiko Matsuo
Katsumi Hagino
Saya Kawata
Tomohisa Hasunuma
Kohsuke Honda

Frontiers in Genetics

doi 10.3389/fgene.2026.1716198

2,942 views
1 citation

Original Research

Published on 12 Mar 2026

When genomics companies act as biobanks: governance challenges in an era of genomic assetization

in ELSI in Science and Genetics

Alexis Walker

Frontiers in Genetics

doi 10.3389/fgene.2026.1778236

3,535 views
1 citation

Editorial

Published on 11 Mar 2026

Editorial: The importance of faculty development in medical education

in ELSI in Science and Genetics

Nina Pereza
Goran Hauser
Predrag Jovanović

Frontiers in Genetics

doi 10.3389/fgene.2026.1798159

2,285 views
1 citation

Original Research

Published on 10 Mar 2026

Navigating tensions between scientific advancement and ethical practice in biobanking: a qualitative study in Japan

in ELSI in Science and Genetics

Masanori Oikawa
Yoshiyuki Takimoto

Frontiers in Genetics

doi 10.3389/fgene.2026.1778587

2,074 views

Original Research

Published on 02 Mar 2026

Ethical and clinical challenges in managing low-penetrance CNVs: insights from Portuguese clinical geneticists

in ELSI in Science and Genetics

Ana Rita Soares
Jorge Diogo Da Silva
Alberto Caldas Afonso
Ana Sofia Carvalho

Frontiers in Genetics

doi 10.3389/fgene.2026.1757167

1,980 views

Original Research

Published on 18 Feb 2026

Geneticization outside genetics’ birthplace: ethical, legal and social implications in the Gulf Cooperation Council region

in ELSI in Science and Genetics

Safa Shaheen
Mohammed Ghaly

Frontiers in Genetics

doi 10.3389/fgene.2026.1716793

2,661 views

Opinion

Published on 13 Feb 2026

Imagining an ethics for synthetic biology

in ELSI in Science and Genetics

Varsha Aravind Paleri
Kristien Hens

Frontiers in Genetics

doi 10.3389/fgene.2026.1746379

2,609 views
1 citation

Original Research

Published on 20 Jan 2026

Incidental genomic findings in large scale research: using the “3-I framework” to reveal policy considerations

in ELSI in Science and Genetics

Suzanne Maria Onstwedder
Carla Van El
Wendy Rodenburg
Adrian Thorogood
Martina Cornelia Cornel
Tessel Rigter

Frontiers in Genetics

doi 10.3389/fgene.2025.1603420

2,394 views

Correction

Published on 13 Jan 2026

Correction: Advancing artificial intelligence ethics in health and genomics: lessons from a public survey in South Korea

in ELSI in Science and Genetics

Jungim Lee
Wonhoo Yoo
Hannah Kim

Frontiers in Genetics

doi 10.3389/fgene.2026.1769636

1,615 views

Original Research

Published on 07 Jan 2026

(Not) “just your nature”. Diagnostic journeys of adults with neurofibromatosis type 1 in Poland

in ELSI in Science and Genetics

Katarzyna Kowal
Jan Domaradzki

Frontiers in Genetics

doi 10.3389/fgene.2025.1713304

3,244 views
2 citations

232 articles

articles

The European Health Data Space and biobanking in Europe: synergies, tensions and the future governance of data-driven health research

Perceptions of and willingness to participate in genomics research among a U.S. sample

Biobanking Across Africa: From Participant-Level Trust to Institutional Trustworthiness

Opportunities to cultivate trust through communication behaviors

Correction: A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction

A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction

From Prohibition to Integration: LLMs in Scientific Publishing

Confusion, communication, and consent: ELSI barriers to genomics-enhanced remediation in Alberta’s oil sands

Digital death and posthumous data: a glocal, relational perspective

Editorial: Insights in ELSI in science and genetics 2024–2025

Rethinking scale in AI-driven genomic medicine – The role of small biobanks

Japanese attitudes toward human brain organoid research: broad support amid ethical concerns

Biobank consent preferences and implications for a mixed consent model: biomedical researchers vs. community stakeholders in a semi-urban Yoruba community, Nigeria

Non-death loss and GenAI: ethical reflections on griefbots of the living

Achieving bottom-up ethical, legal, and societal implications and responsible research and innovation in the synthetic biology research community from the Japanese context

When genomics companies act as biobanks: governance challenges in an era of genomic assetization

Editorial: The importance of faculty development in medical education

Navigating tensions between scientific advancement and ethical practice in biobanking: a qualitative study in Japan

Ethical and clinical challenges in managing low-penetrance CNVs: insights from Portuguese clinical geneticists

Geneticization outside genetics’ birthplace: ethical, legal and social implications in the Gulf Cooperation Council region

Imagining an ethics for synthetic biology

Incidental genomic findings in large scale research: using the “3-I framework” to reveal policy considerations

Correction: Advancing artificial intelligence ethics in health and genomics: lessons from a public survey in South Korea

(Not) “just your nature”. Diagnostic journeys of adults with neurofibromatosis type 1 in Poland