Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 09 Nov 2022

The multidimensional legal nature of personal genomic sequence data: A South African perspective

in ELSI in Science and Genetics

Donrich W. Thaldar
Beverley A. Townsend
Dusty-Lee Donnelly
Marietjie Botes
Amy Gooden
Joanne van Harmelen
Bonginkosi Shozi

Frontiers in Genetics

doi 10.3389/fgene.2022.997595

7,313 views
17 citations

Policy and Practice Reviews

Published on 24 Oct 2022

From the patient to the population: Use of genomics for population screening

in ELSI in Science and Genetics

Chloe Mighton
Salma Shickh
Vernie Aguda
Suvetha Krishnapillai
Ella Adi-Wauran
Yvonne Bombard

Frontiers in Genetics

doi 10.3389/fgene.2022.893832

7,592 views
20 citations

Editorial

Published on 21 Oct 2022

Editorial: Ethical and regulatory challenges in genetic and genomic research involving stored biological specimens

in ELSI in Science and Genetics

Nut Koonrungsesomboon
Kenji Hirayama

Frontiers in Genetics

doi 10.3389/fgene.2022.1062188

1,931 views
2 citations

Policy and Practice Reviews

Published on 13 Oct 2022

Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago

in ELSI in Science and Genetics

Jae Joseph Russell B. Rodriguez
John Meldwin D. Cuales
Michael James B. Herrera
Louward Allen M. Zubiri
Richard N. Muallil
Altan I. Ishmael
Edlyn B. Jimenez
Mark Stoneking
Maria Corazon A. De Ungria

Frontiers in Genetics

doi 10.3389/fgene.2022.901515

18,834 views
4 citations

Hypothesis and Theory

Published on 12 Oct 2022

Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective

in ELSI in Science and Genetics

Cornelius Ewuoso
Allan Sudoi
Dorcas Kamuya

Frontiers in Genetics

doi 10.3389/fgene.2022.1014120

3,731 views
7 citations

Policy and Practice Reviews

Published on 04 Oct 2022

The future regulation of artificial intelligence systems in healthcare services and medical research in the European Union

in ELSI in Science and Genetics

Janos Meszaros
Jusaku Minari
Isabelle Huys

Frontiers in Genetics

doi 10.3389/fgene.2022.927721

20,354 views
88 citations

Editorial

Published on 03 Oct 2022

Editorial: Women in science: Genetics

in ELSI in Science and Genetics

Jaira Ferreira de Vasconcellos
Malak Abedalthagafi
Silvia Calo
Rana Dajani
Zodwa Dlamini
Bertha Hidalgo
Carine Le Goff
Aparna Vasanthakumar

Frontiers in Genetics

doi 10.3389/fgene.2022.1038317

3,181 views
1 citation

Perspective

Published on 21 Sep 2022

Benefit sharing: Why inclusive provenance metadata matter

in ELSI in Science and Genetics

Jacob Golan
KatieLee Riddle
Maui Hudson
Jane Anderson
Natalie Kusabs
Tim Coltman

Frontiers in Genetics

doi 10.3389/fgene.2022.1014044

7,094 views
21 citations

Original Research

Published on 19 Sep 2022

Explainability in medicine in an era of AI-based clinical decision support systems

in ELSI in Science and Genetics

Robin L. Pierce
Wim Van Biesen
Daan Van Cauwenberge
Johan Decruyenaere
Sigrid Sterckx

Frontiers in Genetics

doi 10.3389/fgene.2022.903600

9,632 views
65 citations

Original Research

Published on 15 Sep 2022

Social differentiation of the perception and human tissues donation for research purposes

in ELSI in Science and Genetics

Anita Majchrowska
Michał Wiechetek
Jan Domaradzki
Jakub Pawlikowski

Frontiers in Genetics

doi 10.3389/fgene.2022.989252

3,247 views
13 citations

Original Research

Published on 22 Aug 2022

Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease

in ELSI in Science and Genetics

Jennifer L. Young
Meghan C. Halley
Beatriz Anguiano
Liliana Fernandez
Jonathan A. Bernstein
Matthew T. Wheeler
Holly K. Tabor
Undiagnosed Diseases Network Consortium

Frontiers in Genetics

doi 10.3389/fgene.2022.949422

5,235 views
19 citations

Original Research

Published on 22 Aug 2022

Transparent human – (non-) transparent technology? The Janus-faced call for transparency in AI-based health care technologies

in ELSI in Science and Genetics

Tabea Ott
Peter Dabrock

Frontiers in Genetics

doi 10.3389/fgene.2022.902960

6,596 views
6 citations

Perspective

Published on 19 Aug 2022

Study the forest, not only the trees: Environmental exposures, not genomes, generate most health disparities

in ELSI in Science and Genetics

Taylor V. Thompson
Katherine C. Crocker

Frontiers in Genetics

doi 10.3389/fgene.2022.817899

2,328 views
2 citations

Original Research

Published on 15 Aug 2022

“Democratizing” artificial intelligence in medicine and healthcare: Mapping the uses of an elusive term

in ELSI in Science and Genetics

Giovanni Rubeis
Keerthi Dubbala
Ingrid Metzler

Frontiers in Genetics

doi 10.3389/fgene.2022.902542

9,309 views
33 citations

Perspective

Published on 22 Jul 2022

Community input in a genomic health implementation program: Perspectives of a community advisory group

in ELSI in Science and Genetics

Miranda E. Vidgen
Katrina Cutler
Jessica Bean
David Bunker
Lindsay F. Fowles
Louise Healy
Gary Hondow
Satrio Nindyo Istiko
Aideen M. McInerney-Leo
Gregory Pratt

Frontiers in Genetics

doi 10.3389/fgene.2022.892475

3,304 views
1 citation

Original Research

Published on 08 Jul 2022

Ethical Implications of e-Health Applications in Early Preventive Healthcare

in ELSI in Science and Genetics

Mandy Stake
Bert Heinrichs

Frontiers in Genetics

doi 10.3389/fgene.2022.902631

6,197 views
4 citations

Editorial

Published on 04 Jul 2022

Editorial: Lessons Learned from Translational Research in Neuromuscular Diseases: Impact on Study Design, Outcome Measures and Managing Expectation

in ELSI in Science and Genetics

Anna G. Mayhew
Leslie Nelson
Michela Guglieri
Tracey Willis

Frontiers in Genetics

doi 10.3389/fgene.2022.840074

2,434 views
1 citation

Perspective

Published on 20 Jun 2022

Sharing and Safeguarding Pediatric Data

in ELSI in Science and Genetics

Dimitri Patrinos
Bartha Maria Knoppers
David P. Laplante
Noriyeh Rahbari
Ashley Wazana

Frontiers in Genetics

doi 10.3389/fgene.2022.872586

4,574 views
8 citations

Perspective

Published on 13 Jun 2022

You Can’t Have AI Both Ways: Balancing Health Data Privacy and Access Fairly

in ELSI in Science and Genetics

Marieke Bak
Vince Istvan Madai
Marie-Christine Fritzsche
Michaela Th. Mayrhofer
Stuart McLennan

Frontiers in Genetics

doi 10.3389/fgene.2022.929453

26,515 views
84 citations

Original Research

Published on 13 Jun 2022

Biomolecular Prospecting, Informative Gaps, and the Cancer Clinic: A Qualitative Fieldwork and an Epistemological, Historical and Ethical Analysis of Informed Consent for Clinical Trials for Monoclonal Antibodies and Biobank Research

in ELSI in Science and Genetics

Flavio D’Abramo
Annemieke Bont
Lisa Nüßlein

Frontiers in Genetics

doi 10.3389/fgene.2022.872211

3,134 views

Editorial

Published on 28 Apr 2022

Editorial: The Importance of Genetic Literacy and Education in Medicine

in ELSI in Science and Genetics

Nina Pereza
Borut Peterlin
Saša Ostojić
Željka Poslon

Frontiers in Genetics

doi 10.3389/fgene.2022.910530

3,228 views
3 citations

Perspective

Published on 26 Apr 2022

Precision Medicine Needs to Think Outside the Box

in ELSI in Science and Genetics

Daphne O. Martschenko
Jennifer L. Young

Frontiers in Genetics

doi 10.3389/fgene.2022.795992

3,579 views
11 citations

Perspective

Published on 26 Apr 2022

Recommendations for Sustainable Ancient DNA Research in the Global South: Voices From a New Generation of Paleogenomicists

in ELSI in Science and Genetics

Maria C. Ávila-Arcos
Constanza de la Fuente Castro
Maria A. Nieves-Colón
Maanasa Raghavan

Frontiers in Genetics

doi 10.3389/fgene.2022.880170

14,150 views
39 citations

Policy and Practice Reviews

Published on 24 Mar 2022

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic

in ELSI in Science and Genetics

Lingqiao Song
Hanshi Liu
Fiona S. L Brinkman
Erin Gill
Emma J. Griffiths
William W. L Hsiao
Sarah Savić-Kallesøe
Sandrine Moreira
Gary Van Domselaar
Ma’n H. Zawati

Frontiers in Genetics

doi 10.3389/fgene.2021.716541

6,077 views
11 citations

214 articles

articles

The multidimensional legal nature of personal genomic sequence data: A South African perspective

From the patient to the population: Use of genomics for population screening

Editorial: Ethical and regulatory challenges in genetic and genomic research involving stored biological specimens

Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago

Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective

The future regulation of artificial intelligence systems in healthcare services and medical research in the European Union

Editorial: Women in science: Genetics

Benefit sharing: Why inclusive provenance metadata matter

Explainability in medicine in an era of AI-based clinical decision support systems

Social differentiation of the perception and human tissues donation for research purposes

Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease

Transparent human – (non-) transparent technology? The Janus-faced call for transparency in AI-based health care technologies

Study the forest, not only the trees: Environmental exposures, not genomes, generate most health disparities

“Democratizing” artificial intelligence in medicine and healthcare: Mapping the uses of an elusive term

Community input in a genomic health implementation program: Perspectives of a community advisory group

Ethical Implications of e-Health Applications in Early Preventive Healthcare

Editorial: Lessons Learned from Translational Research in Neuromuscular Diseases: Impact on Study Design, Outcome Measures and Managing Expectation

Sharing and Safeguarding Pediatric Data

You Can’t Have AI Both Ways: Balancing Health Data Privacy and Access Fairly

Biomolecular Prospecting, Informative Gaps, and the Cancer Clinic: A Qualitative Fieldwork and an Epistemological, Historical and Ethical Analysis of Informed Consent for Clinical Trials for Monoclonal Antibodies and Biobank Research

Editorial: The Importance of Genetic Literacy and Education in Medicine

Precision Medicine Needs to Think Outside the Box

Recommendations for Sustainable Ancient DNA Research in the Global South: Voices From a New Generation of Paleogenomicists

Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic