BRIEF RESEARCH REPORT article
Front. Psychiatry
Sec. ADHD
Volume 16 - 2025 | doi: 10.3389/fpsyt.2025.1668780
This article is part of the Research TopicEnhancing Quality of Life in Individuals with Neurodevelopmental Disorders: Pathways to Inclusion and Well-BeingView all 3 articles
Diagnosis Acceptance, Masking, and Perceived Benefits and Challenges in Adults with ADHD and ASD: Associations with Quality of Life
Provisionally accepted
- 1Karolinska Institutet (KI), Solna, Sweden
- 2Rijksuniversiteit Groningen, Groningen, Netherlands
- 3Forskningsstiftelsen FAFO, Oslo, Norway
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Objectives: Research has increasingly focused on neurodivergent individuals' acceptance of their diagnosis and the extent to which they engage in masking behaviors. However, there is a lack of large-scale quantitative investigations. This study, therefore, examined how young adults with attention deficit hyperactivity disorder (ADHD) and/or autism spectrum disorders (ASD) perceive and relate to their diagnosis in terms of diagnosis agreement, diagnosis liking, masking, perceived benefits/challenges, and how these constructs are related to one another and to quality of life. Methods: The sample included adults with ADHD (n = 803), ASD (n = 158), or both ADHD and ASD (n = 95). Participants (aged 18-35; 79% females) completed an online survey assessing diagnosis acceptance, perceived benefits and challenges, masking, and quality of life. Results: The participants reported high agreement with their diagnosis (95%), but fewer liked their diagnosis (29%), and masking behavior varied by context. Participants reported experiencing both benefits (e.g., "seeing things my own way" and "drive to find things out") and challenges (e.g., "mentally exhausting" and "being misunderstood") related to their diagnosis. Quality of life was associated with all other variables, but most strongly associated with perceived benefits. Conclusions: This study shows that adults with ADHD and/or ASD generally agree with their diagnosis, but the extent to which they like their diagnosis varies. Masking is commonly reported and depends on the context. Perceiving benefits was the variable most strongly associated with quality of life, highlighting the importance of clinical approaches promoting strength-based perspectives rather than a strict deficit approach.
Keywords: Neurodevelopmental disorders, ADHD, ASD, Quality of Life, masking, diagnosis acceptance, Benefits, And challenges
Received: 18 Jul 2025; Accepted: 26 Sep 2025.
Copyright: © 2025 Wurth, Fuermaier, Strand and Thorell. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Lisa B Thorell, lisa.thorell@ki.se
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