ORIGINAL RESEARCH article
Front. Pediatr.
Sec. General Pediatrics and Pediatric Emergency Care
Volume 13 - 2025 | doi: 10.3389/fped.2025.1561070
Developing a framework for Swiss Outpatient Pediatric ReseArch NetwOrk (SOPRANO)
Provisionally accepted
- 1University Children's Hospital Zurich, Zurich, Switzerland
- 2University of Applied Sciences and Arts of Southern Switzerland, Manno, Switzerland
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In Switzerland, availability of pediatric outpatient data for research is limited. Pilot projects showed the benefits of collaborative networks for research, but there is no common understanding on how to best organize, govern, operate and fund these. This project aimed at developing a framework for the establishment of a nationwide collaborative outpatient pediatric research network.Methods: Following a qualitative approach, we conducted individual interviews, a workshop and a focus group with pediatricians and other healthcare stakeholders to discuss various aspects related to the development of the research network, including motivations for participation, retention strategies, perceived barriers, expected challenges, and previous experiences.Participants were interested and willing to join such a network and gave valuable inputs, but also emphasized important challenges, particularly time constraints/limited resources, data management/IT infrastructure and funding. These insights allowed developing the outline of a threestep iterative implementation plan.The project emphasized key elements to consider for the development of a Swiss Outpatient Pediatric Research Network sustainable in the long term, that would mark a pivotal advancement for pediatric healthcare research.
Keywords: pediatrics - children, Participatory Research, Research Network, Healthcare service, outpatient care, Primary Care
Received: 15 Jan 2025; Accepted: 06 Jun 2025.
Copyright: © 2025 Kuske, Maione, Soldini and Von Rhein. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Michael Von Rhein, University Children's Hospital Zurich, Zurich, Switzerland
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