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BRIEF RESEARCH REPORT article

Front. Educ.

Sec. Mental Health and Wellbeing in Education

Volume 10 - 2025 | doi: 10.3389/feduc.2025.1655848

This article is part of the Research TopicHolistically healthy humans: championing mental and physical wellbeing in educationView all 11 articles

Fostering healthy schools for students with SEND through co-production: Creating an educational toolkit to support young people with 22q11.2 deletion syndrome

Provisionally accepted
  • Centre for Research in Psychological Wellbeing, School of Psychology, University of Roehampton, London, United Kingdom

The final, formatted version of the article will be published soon.

Children and young people with 22q11.2 deletion syndrome (22q) face unique educational and wellbeing challenges that are often poorly understood in mainstream schools. This participatory action research (PAR) aimed to produce a practical, school-based toolkit to support the needs of pupils with 22q with a focus on wellbeing and inclusive practice. Participants included educational professionals (N=7), young people with 22q and their parents (N=9), and staff in schools (N=3). Data were collected through questionnaires, a co-production workshop, and a focus group, and analysed thematically. Participants collaboratively designed three resources; an infographic poster, a pocket guide for staff, and a short, animated video aimed at peers. Survey findings identified key gaps in staff knowledge, inconsistent provision, especially for transition, and limited wellbeing support, in line with the authors' previous research. These findings helped to inform the development of the resources, which were praised by staff in schools for clarity, adaptability and alignment with existing practices. This study demonstrated how co-produced, low-cost resources can enhance awareness, promote inclusion and support the holistic wellbeing of pupils with 22q. This approach offers a scalable model for addressing similar gaps across wider SEND.

Keywords: Special educational needs (SEND), 22q11.2 deletion syndrome (22q), Inclusiveeducation, Mental wellbeing, Participatory Action Research (PAR), Co-production, Educationaltoolkit

Received: 28 Jun 2025; Accepted: 01 Oct 2025.

Copyright: © 2025 Gudbrandsen and Jayman. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

* Correspondence: Maria Gudbrandsen, maria.gudbrandsen@roehampton.ac.uk

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