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PERSPECTIVE article

Front. Public Health

Sec. Public Health Policy

Volume 13 - 2025 | doi: 10.3389/fpubh.2025.1587738

This article is part of the Research TopicTackling Non-Communicable Diseases and Epidemiological Transition in Low- and Middle-Income CountriesView all articles

Measuring Success of Targeted Screening and Prevention for Hemoglobinopathies

Provisionally accepted
Rajat  Kumar AgarwalRajat Kumar Agarwal1,2*Sundar  PeriyavanSundar Periyavan1Deepa  TrivediDeepa Trivedi1Vaibhav  ShahVaibhav Shah1Mohana  ReddyMohana Reddy1George  ManiGeorge Mani1Kumari  AnkitaKumari Ankita1,2Amit  SedaiAmit Sedai1,2Lawrence  FaulknerLawrence Faulkner1,3
  • 1Sankalp India Foundation, Bangalore, India
  • 2Jagriti Innohealth Platforms Pvt Ltd, Bangalore, Karnataka, India
  • 3Cure2children Foundation, Firenze, Italy

The final, formatted version of the article will be published soon.

1. Effective screening for hemoglobinopathies prevents affected births. Success relies on counselor quality, testing accuracy, accessibility, timeliness, and demographic factors influencing participation and outcomes. 2. Screening Rate measures the percentage of at-risk women successfully screened and informed, reflecting the program's reach and timeliness. 3. Prevention Index tracks the number of women enrolled per birth prevented, highlighting the program's effectiveness in reducing affected births. 4. These indicators help measure the effectiveness, cost-efficiency, and societal impact of screening programs, guiding improvements and resource allocation.

Keywords: screening, Prevention & control, Hemoglobinopathies, Program Evaluation, Thalassemia and Sickle Cell Disease

Received: 04 Mar 2025; Accepted: 16 Jul 2025.

Copyright: © 2025 Agarwal, Periyavan, Trivedi, Shah, Reddy, Mani, Ankita, Sedai and Faulkner. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

* Correspondence: Rajat Kumar Agarwal, Sankalp India Foundation, Bangalore, India

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