ORIGINAL RESEARCH article
Front. Public Health
Sec. Public Health Policy
Volume 13 - 2025 | doi: 10.3389/fpubh.2025.1644144
This article is part of the Research TopicNeurodevelopmental Disabilities in Childhood and Adolescence: Innovative Policy and ProgramsView all 3 articles
Caregiver and Clinician Perceptions of Barriers to Cerebral Palsy Healthcare -mixed methods findings and systems change recommendations
Provisionally accepted
- 1Emory University School of Medicine, Atlanta, United States
- 2Appalachian State University, Boone, United States
- 3Children's Healthcare of Atlanta Inc, Atlanta, United States
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The present paper is the second in a series of exploration phase efforts toward building and sustaining patient-centered agendas for research and clinical care in CP. Focus group and surveys were used to assess perspectives of caregivers of young children with CP (N=19) and clinicians (N=102) regarding CP-specific medical care priorities and barriers and facilitators to high quality CP-focused care in Georgia, US. Areas of synergy and discrepancy between the two stakeholder groups converge on the notion that (1) empowering caregivers to better utilize the resources that do exist and (2) building provider capacity and confidence in efficient delivery of high-quality CP care is critical to drive system changes for improving access and outcomes across the lifespan. Proposed action items for systems change arise from the convergence of caregiver and clinician responses.
Keywords: Cerebral Palsy, Needs Assessment, clinician perspectives, trainee pathways, clinical access, disability community engagement
Received: 10 Jun 2025; Accepted: 30 Sep 2025.
Copyright: © 2025 Murphy, Colquitt, Ryals, Shin, Kjeldsen and Maitre. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence: Nathalie L Maitre, nathalie.linda.maitre@emory.edu
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